Webinar - Gene Therapy for Hemoglobinopathies

With the recent FDA approval of curative therapies for hemoglobinopathies, there is tremendous excitement surrounding these therapies, but they remain inaccessible to the majority of this patient population. We need to discuss as a community how best to educate both patients and providers on curative therapies, and how to address inequities in access to care. As the hematologist is the trusted source of information for these families, the introduction of these topics will often come from the hematologist, but there is a need to improve cross-communication between hematology and transplant physicians. We will provide participants with educational resources, discuss advocacy initiatives, and discuss the importance of psychosocial support both prior to and after curative therapy.

The objectives for this webinar are below:

Learning Objectives:  

1.      Participants will gain confidence engaging patients in shared decision making regarding curative therapies for hemoglobinopathies.

2.      Participants will understand the importance of and current standards for patient psychosocial assessments and preparation for curative therapy for hemoglobinopathies. 

3.      Participants will gain a better understanding of indications for curative therapy referral and available resources for patients and providers.

Speakers

• India Sisler, MD (moderator)
• Alexis Thompson, MD, MPH
• Lakshmanan Krishnamurti, MD
• Cecelia Valrie, PhD

To access the webinar, once registered, log into your ASPHO My Library account with your ASPHO username and password, and click on the video icon: - "Access the Webinar".